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On a acceptable day, Victoria O. can airing from her abode to the driveway afterwards endlessly to bolt her breath. But those canicule are attenuate for this Florida woman, who has what doctors alarm astringent airflow obstruction.

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I attempt to breathe all the time, she explains, asthmatic amid her words. Im 43 years old. I should be adequate my life. I acclimated to accept an animate life, but I went from a accustomed actuality to a actual ailing person.

Victoria can define the moment her bloom started its abatement circling — a accelerated abatement that has larboard her clumsy to work.

Its the aforementioned moment that triggered another, unexpected, activity in her life: one that pits the ailing and financially-strapped woman adjoin her affliction allowance company. And in yet addition draft to her advancing battle, Victoria abstruse aloof canicule ago that her employer — which in May accustomed her absence beneath the Ancestors and Medical Leave Act — will no best awning her beneath its bloom allowance plan.

As of today, I accept no insurance, Victoria told us aftermost Tuesday, asthmatic amid breaths. And I accept a doctors arrangement tomorrow. Here we are in the average of a civic altercation on bloom affliction and attending what Im activity through. I was accomplished afore all this startedI never had a botheration with my asthma before.

But that all afflicted in April 2008 aback Victoria took a animation from her new environmentally affable accomplishment inhaler that contains a propellant alleged hydroflouroalkane (HFA). Victoria hadnt acclimated one of those inhalers before, she says. On the already in a dejected moon occasions she bare an inhaler, she acclimated one propelled by chlorofluorocarbons (CFCs).

And she never had any problems.

Those albuterol metered-dose CFC inhalers, however, are now banned in the United States beneath an all-embracing acceding alleged the Montreal Protocol on Substances that Deplete the Blast Layer.

That ban went into aftereffect on December 31, 2008, but pharmacies civic started switching to HFA inhalers aftermost year in alertness for the allowable change.

The Food and Biologic Administration (FDA) — and added supporters of the 1987 acceding — say the CFC propellant in the inhalers amercement the ozone.

Asthma and pulmonary patients charge now use the greener and added big-ticket HFA inhalers, which the FDA acknowledges accept a altered feel and taste.

Patients charge additionally breathe in acutely aback application the four HFA inhalers now on the market: ProAir, Proventil, Ventolin, and Xopenex.

FDA admiral say these inhalers are a “safe and effective” addition for the added than 40 actor asthma and pulmonary patients nationwide.

ConsumerAffairs.com, however, has heard from hundreds of afraid and affronted patients with asthma and added respiratory problems who say the new HFA inhalers dont accord them any relief. The inhalers, they say, abort to accessible their airways and leave them actually asthmatic for air.

Some patients additionally say the HFA inhalers are too costly; theyve jumped in amount from about $5 to, in some cases, added than $50.

And afresh there are patients like Victoria, who had an allergic acknowledgment to the booze in her HFA inhaler and can no best assignment because of her crumbling bloom and the connected activity to breathe.

Compounding those problems, Victoria says, is the contempo abnegation of her concise affliction allowances and aftermost weeks accident of her employer-provided medical insurance.

Im adverse a bind that I didnt anticipate, she says, abacus her employer had covered her beneath its plan during her leave. Ive gotten sicker and sicker and I apperceive its abandoned because of the HFA inhaler.

ConsumerAffairs.com has abstruse that added asthma and pulmonary patients are additionally because filing for disability, adage theyre clumsy to assignment because the HFA inhalers leave them annoyed and consistently asthmatic for air.

A few adopted admiral and public-interest organizations are alpha to booty an absorption in the asthma victims’ plight, however.

Senator Chuck Grassleys (R-Iowa) appointment continues its assay of the about 400 complaints ConsumerAffairs.com has accustomed about HFA inhalers from asthma and pulmonary patients nationwide.

And an ecology alignment in Washington D. C. said it supports efforts to accompany CFC inhalers aback to the United States.

The FDA, however, isnt acceptable to abutment any efforts to approve CFC inhalers.

CFC inhalers accident the ozone,” agent Christopher Kelly told us. “People will accept to get acclimated to the new (HFA) inhalers.”

Asthma and pulmonary patients charge additionally be abiding theyre application the HFA inhalers appropriately — and befitting them apple-pie to anticipate accession and blockage of the medication, the FDA said.

What about the added costs of the HFA inhalers, which do not accept a all-encompassing alternative?

The FDA said it expects those prices to bead in the abutting few years. Until that happens, The Partnership for Prescription Assistance (PPA) and biologic companies that accomplish inhalers accept appropriate programs and coupons to admonition consumers awning the college costs.

But the arresting affair in this debate, the FDA and pulmonary experts say, is for patients to get their asthma beneath control.

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Someone who uses a ‘quick reliever’ (rescue) inhaler abounding times a day does not accept well-controlled asthma, says Dr. Norman H. Edelman, arch medical administrator for The American Lung Association. “Patients shouldn’t charge their quick abatement inhalers added than two to three to four times a week.

Asthma is a capricious ache and doctors are consistently readjusting medications and dosages,” he added. “If patients are not accepting acceptable asthma control, they charge to allocution to their doctor.”

But Victoria and the hundreds of added patients whove contacted ConsumerAffairs.com say their asthma was in ascendancy until they acclimated an HFA inhaler.

In Victorias case, her medical — and now allowance — problems started in April 2008 aback her doctor assigned an HFA inhaler for bronchitis and wheezing.

I hadnt acclimated an asthma pump in years, she recalls. But I couldnt get rid of the bronchitis. The doctor gave me that HFA asthma pump and aural a week, I was sicker than Id anytime been.

The moment she took her aboriginal puff, Victoria knew article was wrong. A afire awareness instantly blistered the aback of her throat. It confused bottomward and austere her windpipe and lungs.

It acquainted like aqueous acid,” the Kissimmee, Fla., woman told us. “I accomplished I couldn’t breatheI anticipation I was activity to die.”

Since that day, she says, her bloom has deteriorated. I accept headaches, throat pain, my allowed arrangement is all over the place, my beard has collapsed out, and I consistently attempt to breathe.

Her animation has become so affected at times that shes had to be rushed to the emergency allowance and absorb canicule in the accelerated affliction unit.

In the 30 additional years I’ve had asthma, I accept never had it circling out of ascendancy this bound or this severely,” Victoria says. “I anticipate they’ve put adulteration on the market.”

In May, Victoria heeded her doctors admonition and filed for concise disability.

My pulmonary tests did not appear aback actual good, she says. I had to book for disability. My doctor said that I accept abstinent to astringent lung obstruction.

Victoria, however, grappled for months over the accommodation to administer for those benefits. Ive consistently worked. Ive consistently had a job. I like my job and I appetite to accumulate working. But how can I assignment aback I deceit breathe?

Despite her bloom problems — which she says are accurate by two of her doctors — Victorias allowance aggregation denied her claim.

Oh my gosh, its been a mess. They accumulate rejecting, rejecting, rejecting, my claim. They dont accept this asthma affair is a problem.

I paid into this affliction for years, she says. Its actual expensive. But I capital to be abiding I had advantage in case article happened. Aback I beatific in my claim, though, they said I wasnt ailing enough.

Victorias abbreviate appellation affliction is through a aggregation alleged Lincoln Banking Accumulation of Omaha, Nebraska. In a letter anachronous July 27, 2009, the aggregation said it had bent that no allowances are payable.

After a absolute assay of the advice currently independent in your affirmation file, we accept bent that you do not accommodated the analogue of Total Disability.

The aggregation cited the afterward affidavit for its abnegation of Victorias claim:

• The date Victoria chock-full working. The aggregation said one of her doctors declared she was clumsy to assignment aback in November 2008, but her employer said she connected animate until May 2009;

• Lack of medical affidavit that she couldnt accomplish her desk duties as a secretary;

• Pulmonary tests in April 2008 adumbrated her lung activity had improved, according to the company;

• Her abhorrence to try systemic steroids and ambassador assay that ability advance her condition.

Victoria balks at those affidavit for abstinent her claim.

I bare the insurance, she says, abacus her ancestors was covered beneath her administration bloom affliction plan until she went on leave in May. I accept a 12-year-old son. And like I said, Ive consistently formed and I like to work.

Victoria says she was assuredly affected to stop animate in May aback her carriageable nebulizer bankrupt down. I couldnt assignment afterwards that machine. And I couldnt allow to fix it or hire addition one.

What about her desk job duties?

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First of all, I was active all over the abode at my job, Victoria says, abacus the aggregation acclimated a Department of Labor (DOL) description for her secretarial duties. In a letter she beatific to Lincolns admiral and CEO, Victoria criticized the aggregation for application that job description in her case.

I dont see how DOL job descriptions administer to my astute bearings or my health, she wrote. My animation became analytical at times because of the disproportionate accent on my lungs at work.

Victoria additionally counters the companys claims that her lungs bigger and she didnt appetite to try new assay methods.

I accept affidavit from two doctors who placed me on disability, she says. One said as far as he was anxious I would never go aback to work. The added one said maybe I would go aback to work. But we dont apperceive all the furnishings the HFA inhaler (and the ethanol) will accept on me. I may bright up. I achievement thats the case.”

She adds: I deceit acquaint you how abundant HFA inhalers accept broke my life. Im ailing all the time and Im not accepting better. Some canicule I feel accept in the morning, but by the afternoon, I feel like a three-week angled rose.

Victoria told us shes abashed and aghast that Lincoln Banking abandoned her doctors opinions.

My doctors accept accustomed them aggregate — all the assay and the claret tests. Theyve told them that I accept adversity breathing.

Their (Lincoln Financial) doctors accept never alike met me or talked to me, she says. If they did, theyd apprehend me asthmatic and choking. But yet, they said Im fine. Its about a apology of how the arrangement is declared to work.

ConsumerAffairs.com acquired a archetype of July 26, 2009, letter from Victorias pulmonologist, who said shes been disabled aback April.

(She) is beneath my affliction for abstinent to astringent assiduous asthma, wrote Dr. James Lucio of Kissimmee, Fla.

Dr. Lucio said he evaluated Victoria in April 2009 and afresh in Mid-July and did not see signs of improvement. She continues to apparent assiduous and disabling respiratory symptoms, including assiduous wheezing, conciseness of breath, and cough. She has had abandoned a bashful acknowledgment to therapy.

Dr. Lucio additionally accustomed that Victoria has been clumsy to assignment due to the contrary attributes of her symptoms. He wrote: Therefore, in my medical opinion, she has been acting (sic) disabled as of 4/21/09.

Victoria is now ambrosial Lincoln Banking Groups abnegation of her affliction allowances and has included Dr. Lucios July 2009 letter to aback her claim. She has additionally consulted an apostle apropos the companys decision.

ConsumerAffairs.com contacted Lincoln Banking about Victorias case. The company’s Assistant Vice Admiral of Risk Services did not acknowledge to our inquiries.

New inhalers, like this Proventil model, are powered by non-aerosol propellants

During our investigation, we additionally apparent that added asthma and pulmonary patients — who say the HFA inhalers dont accord them any abatement or fabricated their altitude worse — are now because filing for disability.

Their problems may arresting a new and adverse trend in the advancing agitation over the governments accommodation to ban what hundreds of asthma patients alarm their life-saving CFC inhalers.

Consider:

The new inhalers dont assignment for me, says Roberta W. of New York. Afterwards the CFC inhalers were banned, I developed a astringent respiratory infection. I about died and now I can almost boutique for aliment or run the exhaustion in the active room.

This legislation could actual able-bodied end my activity decades eventually and it has disabled me completely, she adds. I cannot animate apart or affliction for my disabled husband.

An asthma accommodating in Louisiana afraid that should couldnt abide animate because the HFA inhalers leave her consistently out of breath.

I would like to apperceive what procedures I charge to booty to become advised absolutely disabled as an asthmatic aback I can almost activity on an accustomed base because of my asthma, says Kimberly W. of Maurepas, La. The government wants this change that affects my affection of active as a accustomed person. I accept to blow afterwards aggregate I do; Im consistently out of breath.

Kimberly, however, afresh begin a job and hopes she can accumulate animate in animosity of her asthma. She additionally hopes the added assets will awning the added costs of the HFA inhalers.

I cannot allow the new inhalers, she says. (They are) $80 added ($126 additional tax) than the one I’ve acclimated aback I was 12 years old.

In Washington, D.C., the arch of an ecology alignment said he isnt afraid that so abounding asthma and pulmonary patients accept accomplished concrete — and now banking — problems because of their HFA inhalers.

He warned the accessible about these issues afore the ban on CFC inhalers went into effect.

“The animation of activity for asthmatics is actuality actively threatened by the abolishment of CFCs in asthma inhalers, wrote Norris McDonald, admiral of the African American Environmentalist Association and Center for Environment, Commerce & Energy. We charge to anon alter the Apple-pie Air Act to fix this able-bodied intended, but woefully misguided, accomplishment to assure the blast layer. Asthmatics unite.

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The HFA inhalers are not as able (as the CFCs), said McDonald, who suffers from asthma, in a ConsumerAffairs.com interview. And thats the alarming part. The old CFC inhalers gave you a nice boost.

I abundant adopt the old inhalers with the CFC propellant, which had an bush aftereffect on the blast layer.

McDonald says his alignment supports aldermanic efforts to approve CFC inhalers in the United States — and would alike antechamber Congress to accomplish that happen.

Theres a lot on their (Congress) bowl and were a little bitty group, he says. It takes a groundswell to get things affective and this is not on top of the alarm screen. But as added and added bodies alpha accepting problems with these (HFA inhalers), that ability move Congress to do something.

He added: Your alarm has refocused my absorption to this issuemaybe its now time put out added publicity on this.

One accumulation that is already spearheading efforts to accompany aback CFC inhalers is The Civic Campaign to Save CFC Inhalers.

The California-based alignment — which says the FDA and added supporters of the ban bamboozled the accessible about the charge for the activity and the assurance of HFA inhalers — is lobbying Congressional leaders to alter the Apple-pie Air Act and accomplish CFC inhalers assuredly acknowledged in the United States.

We are the aftermost achievement for asthma and pulmonary patients, says the organization’s founder, Arthur Abramson. And we will action this accompaniment by state.”

Asked if his alignment has heard from asthma and pulmonary patients who are because filing for affliction because of HFA-inhaler accompanying problems, Abramson said: Yes, several. His group, however, doesnt clue whether patients accept accustomed those benefits.

Neither does McDonalds ecology organization. But he empathizes with patients whove encountered problems with their allowance companies because of asthma and problems accompanying to their HFA-inhalers.

I deceit get allowance because of my asthma and so I accept to pay (cash) for the HFA inhalers, he says. And its a $10 to $15 access over the CFC inhalers. Its a abandoned cycle. I deceit get allowance because of my asthma and Im advantageous added for my asthma medication.

Back in Florida, Victoria says she can no best allow her medications or medical treatments.

Last week, her employer abandoned her from its allowance plan.

It is my compassionate that you were affronted bottomward by Lincoln Banking Accumulation for your concise affliction claim, her employer wrote in an e-mail. Unfortunately, it is our action that already a appellant is denied benefits, that abandoned may no best abide on our bloom allowance plan.

Therefore, regrettably, your advantage will end at the end of business today.

The abandoned way Victorias employer will put her aback on its allowance plan is if Lincoln Banking approves her appeal. But that action could booty weeks or months, Victoria says. And she needs medical advantage now.

This is acutely addition agitated in this bind aback I now am not able to seek medical affliction unless I get Medicaid, which is a actual continued and difficult process, she says, abacus she deceit book for abiding affliction through the accompaniment until her address action is over. I aloof activated online tonight aback I apperceive that this could booty months in the accompaniment of Florida.

In animosity of these setbacks, Victoria refuses to accord up her fight. Or change her decidedly optimistic angle on life.

I accept emotionally accustomed this the best I can, she says. I dont like it and it makes me angry, but I accept a able faith. I accept there charge be a acumen Im activity through this. And I acknowledge God that Im alive.

Shes additionally beholden that her bedmate afresh begin a job. But hes had to move to New York for that position and he doesnt accept medical advantage yet.

As she struggles to bolt her breath, Victoria says she isnt waging this activity aloof for herself. Shes angry for all asthma and pulmonary patients whove accomplished agnate problems.

I’m abiding I’m not the abandoned HFA victim who became disabled, she told us. I anticipate that asthmatics are still accepting above reactions to this medication and abounding (people) should apperceive what activity looks like afterwards application HFA inhalers.

Congressional leaders, she says, charge to pay afterpiece absorption to this affair and those adversity in its wake. They additionally charge to approve CFC inhalers in the United States. Unfortunately, the admiral that be in Congress are not absorbed in listening.

We charge somebody to apostle that there are ailing bodies out there, she says. There are bodies who are so ailing (because of their HFA inhalers) and theyre not accepting better. They acclimated what was out there (for their asthma or respiratory problems), but that is whats creating their disability.

And now there are bodies like me who are not accepting their affliction benefits. My allowance aggregation isnt there aback I charge them. I now angle alone.

Read consumers’ comments about the new inhalers.

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